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Mother’s Moving And Inspiring Message To Her Daughter Living With Cerebral Palsy

Suzy Njeri is one of the proudest mothers around. She is never afraid of showing off her daughter who’s living with cerebral palsy.

Just recently, Njeri left many showering her with praises after she shared the story of her daughter who was diagnosed with the condition at 6-months-old. Her story went viral and has inspired parents with children living with cerebral palsy to accept and treat them just like other normal children.

“I WILL NEVER FORGET THE LOOK THE DOCTOR GAVE ME WHEN HE SAT NEXT TO ME IN THAT HOSPITAL ROOM SEVEN YEARS AGO, TO TELL ME MY 6-MONTHS-OLD DAUGHTER HAD CEREBRAL PALSY AND I SHOULDN’T SPEND SO MUCH MONEY ON NEUROLOGIST’S APPOINTMENT RATHER SPEND ON THERAPY. HIS EYES LOOKED STRAIGHT AT ME, STRIKING LIKE A SWORD THROUGH MY HEART. ALL I WANTED IS HOPE THAT THIS IS GONNA BE OVER SOON!!

 

BACK THEN, NOT KNOWING BETTER, I REMEMBER FEELING DESPAIR, ANXIETY AND MOSTLY HOPELESSNESS. HOPELESSNESS FOR WHAT I IMAGINED MY DAUGHTER’S LIFE WOULD BE LIKE. HOPELESSNESS FOR WHAT I IMAGINED THE DIAGNOSIS MEANT FOR ME AS A PARENT. HOPELESSNESS FOR HOW DIFFERENT I THOUGHT MY FAMILY WOULD LOOK AT THE ONE I HAD IMAGINED. I HAD A MOMENT OF EMOTIONAL MELTDOWN!

 

I WAS CHANGED IN AN INSTANT AND FOREVER BY THAT DOCTOR’S LOOK. I TRULY FELT I WOULD NEVER LAUGH AGAIN! BUT NOW, LOOKING BACK AT THAT MOMENT, I HAVE REPLACED THAT ANXIETY, SORROW AND FEAR WITH DIFFERENT EMOTIONS: HOPEFUL ONES”.

The proud mother has for the first time penned down a letter to her daughter and here is what she wrote;

“(Every parent to a child with Cerebral Palsy has some FEAR over what awaits their children. I hereby address our children, just like their mother)

A letter to my daughter

The day we found out about your special needs, your diagnosis of cerebral palsy, I was never worried for myself. I already knew I loved you with all my heart. I already knew I would do whatever it took to take care of you. I already knew I would be willing to sacrifice anything for your well-being and happiness. I knew I wouldn’t trade you for the world because you are my world. My days were filled with doctors appointments, therapists offices and lots of waiting rooms, but they didn’t bother me. I love helping you, and watching you learn and grow.

I know I’m not super mom, but I try my best to you. You have such a sweet heart. Seeing your joy and love for people inspires me. Your heart of gold makes me want to be a better person. I would do anything to keep you this way — young and innocent. I’ll fight for you ever day and will go to the ends of the earth to keep you safe. Yet, I know no matter how hard I fight or how much I try, my biggest fear for you will one day come true. I can’t stop it. I can’t change it. I just have to sit and wait for it.

Because what I FEAR the most is the DAY YOU WILL UNDERSTAND.

That day you see how different your life is.

When you learn that all these appointments aren’t just fun new play places. When you start to notice the stares of strangers and understand the comments they make. The day you wonder why you can’t run as fast as your friends. When the other kids want to know why you are so different. When someone tells you that you can’t or underestimates your strength. The day that you get called slow. When you’re so frustrated because you put out so much effort, as much as you truly have, and you still can’t do what you want. I know this day will come. I dread the day already.

How badly I wish I could keep you here. In the place where your smile never fades. The place where you feel strong and safe. I know the world is harsh, and I know it will all be a little harsher for you. I know I will never be able to change it. I can’t change the fact that one day that fearful day will be upon us.

The truth is, that day will come, but it will also go. That day I dread for you, my sweet baby, isn’t one that will last forever. It will pass, and a new day will come. Even though the battle will have just started on that day, I know you will make it though. Day by day, you will make it through.

Because I’ll be here waiting.

I’ll be here waiting to build you up and to remind you of how truly special you are. I’ll be here with arms open wide to hold you if you want to cry. I’ll be here to remind you that you believe God doesn’t make mistakes. I’ll be here waiting, waiting for that day.”

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